Friday, June 12, 2015

Medical Jargon #UseYourWords June 2015

Today’s post is a writing challenge. This is how it works: participating bloggers picked 4 – 6 words or short phrases for someone else to craft into a post. All words must be used at least once and all the posts will be unique as each writer has received their own set of words. That’s the challenge, here’s a fun twist; no one who’s participating knows who got their words and in what direction the writer will take them. Until now.

My words are: 
medical ~ terrifying ~ results ~ possibility ~ book
They were submitted by:       

Sometimes I get the e-mail with my words, and I think how on Earth am I going to put these together in a post. Other times I get the words, and I just instantly know. This was one of the times, that the words instantly spoke to me. They fit perfectly into my life. Thank you for such wonderfully appropriate words, Carol! 

If you have been following my blog, then you know that I have had my share of medical struggles. I have even had a few medical triumphs. Lately, I have been working with numerous doctors, to try to figure out the medical mystery that is me. I really wish Dr. House were real. I could most certainly use him, and I am quite certain I could keep him and his team busy.

I was talking to my good friend Karen recently, and we discussed how I could write a book, based on my life. Sometimes, I don't believe my life, and I am the one actually living it. Sometimes it is a good disbelief, and other times it is not so good. 

Recently, my doctor and I have been working very hard to figure out exactly what is causing some of my worst symptoms. I had not really spoken out about it, but based on some of my symptoms, I was terrified of many of the diseases that were a possibility. I spent weeks terrified I had early onset Alzheimer's. I am very happy to say that has been marked off the list of possibilities. 

We still don't have a concrete explanation of what exactly is going on, but we have gotten some answers. I am undergoing more tests, and I must say it is terrifying waiting for the results of each test, but I want answers so badly. I am tired of not knowing why my body is doing the things it is doing. 

Lately, I have been going to this local oncologist for two and three iron infusion treatments a week. I was terrified at first, but it is a wonderful office, and the nurse is great. I just sit there and watch movies, while gunk is pumped into my veins. I hate the treatments, but I need them, so I deal. I will be grateful when next week is over. I have three more treatments in a row, and then I get to get tested. If the results are good, I will get to cut back on the frequency of treatments. I am hoping for one or two treatments a month, versus two or three a week. 

I also have to go to the hospital next week, and spend the day there undergoing tests. I am really not looking forward to it, but I am hoping we get more answers we need. The doctor said I may need to stay overnight, so please keep your fingers crossed for me. I would really rather not end up in the hospital overnight. 

The biggest medical news I have received back from all the tests I have been undergoing, is that I have an invasive arachnoid cyst on my brain. It is quite large and impacting three areas of my brain. Occipital, Parietal, and Temporal. It is having a major impact on me. It may even be the answer of some of biggest mysteries. I am waiting to get in with a specialist. She comes highly recommended, and I have been assured if anyone can help me, it is her. My doctor feels it is inoperable, but is hopeful this specialist will be able to work some magic. 

So, yes, lots going on medically with me, but nothing I have been unable to handle. I am staying strong and pushing onward. I have come too far to even think of giving up now. Besides, I have a party to plan for a two year old. Yes, two years. Can you believe Gigi is going to be two soon? I surely can't. I am not ready, but ready or not here it comes! 

I hope you all have a fabulous Friday and a wonderful weekend! Now, take a wander to all the other Use Your Words posts! Enjoy!

Links to the other “Use Your Words” posts:

Baking In A Tornado                                
Spatulas on Parade                          
The Momisodes                                          
Stacy Sews and Schools                
Sparkly Poetic Weirdo                             
Eileen’s Perpetually Busy                    
Battered Hope                                
Southern Belle Charm                       
Someone Else’s Genius                     


  1. (((HUGS))) That is a tough and heartbreaking diagnosis, I am praying for you and thank you for sharing and being so honest.

  2. Sending love, light and strength your way. Hoping you get some concrete answers soon. ❤

  3. Your medical situation breaks my heart but your attitude gives me hope.
    I have my fingers crossed that this specialist has some magic for you, and that these treatments are helping. I think of you every day.
    And yes, I do know you have a book in you.

  4. Attitude is everything. If people get too scared by diagnoses and doctors' predictions they will get sicker. If they are determined to fight, they will win. I know you're a fighter, and you will get your answers and treatments!

  5. Sending good thoughts your way! Love your attitude. My money is on you!

  6. Sending so many hugs, good thoughts and prayers to you!!!
    <3 <3 <3 <3

  7. Oh my gosh, Jules! I can't even imagine. I'm sending happy, healing thoughts your way. I hope you get the answers you need.

  8. You're doing great and I love following your story on FB. Lots of prayers sent your way!!



Welcome to June's Blog with Friends!! Each month a theme is chosen and then participating bloggers use the theme, to create their own un...